Jeremy Thoms, 21, has Krabbe disease and received a stem cell transplant at 4 weeks old From the No time to lose: Finding rare diseases in infants series Dec 18, 2021 Dec 18, 2021 Updated Jan 9, 2023 Packers' Tucker Kraft aims for Week 1 start US vice president slams Israel over criticism of Trump's Iran deal Paint from Trump renovation peels off Washington's Reflecting Pool A night of bad luck for the Brewers and Jacob Misiorowski in Atlanta Watch a week of unrest unfold at Delaney Hall ICE facility in Newark UN: 86% Chance US Hits Hottest Year on Record by 2027 2026 World Cup Rule Changes You Need to Know Trump Won't Rule Out Compensation For January 6 Rioters Iran's Ghalibaf warns of 'direct confrontation' amid Israeli attacks on Lebanon Downtown Horicon suffers damage in Wednesday afternoon storms Caroline Harvey proud to see the growth of women's sports ahead of PWHL draft Watch now: Phil Hands draws about a new cellphone policy in Madison schools Darren Clarke and Ben Crane break down their record round at the AmFam Championship Prefer us on Google Learn More Jeremy Thoms, 21, has Krabbe disease and received a stem cell transplant at 4 weeks old Previous Next More in No time to lose: Finding rare diseases in infants (7 of 14) Newborn screening, treatment make big difference with rare muscle disorder Read more In this Series No time to lose: Finding rare diseases in infants 1 Updated Jun 9, 2022 article Newborn screening not equal among states, leaving some babies untreated 2 Updated Jun 9, 2022 article Many Wisconsin hospitals send some newborn screening samples late 3 Updated Jan 6, 2023 article Wisconsin wants to hold onto newborn screening specimens longer 14 updates As featured on Newborn screening not equal among states, leaving some babies untreated Wisconsin doesn't test for Krabbe and Pompe diseases, deadly but treatable disorders detected in many other states. No time to lose: Finding rare diseases in infants Wisconsin doesn't screen newborns for some disorders other states include, which can delay t… Wisconsin halts plan to keep newborn screening samples for 10 years Lawsuits in other states have raised concerns about parental consent and use of the specimens for medical research and criminal investigations. Latest video Bucks agree to trade Giannis Antetokounmpo to Miami in blockbuster deal Does Prime Day include free shipping? The hidden costs to watch for Pack These Essential Medicines For Your Next Vacation World Cup Spectacle in New York: Soccer Fans Take Over Times Square Top stories for June 22, 2026 Vandals Warned of Criminal Charges Over Reflecting Pool Damage Starmer Steps Down After Emotional Downing Street Farewell Who's Joel Brennan? He might be Wisconsin's next governor Latest video Bucks agree to trade Giannis Antetokounmpo to Miami in blockbuster deal Does Prime Day include free shipping? The hidden costs to watch for Pack These Essential Medicines For Your Next Vacation World Cup Spectacle in New York: Soccer Fans Take Over Times Square Top stories for June 22, 2026 Vandals Warned of Criminal Charges Over Reflecting Pool Damage Starmer Steps Down After Emotional Downing Street Farewell Who's Joel Brennan? He might be Wisconsin's next governor Facebook Twitter WhatsApp SMS Email Print Copy article link Save
Newborn screening not equal among states, leaving some babies untreated Wisconsin doesn't test for Krabbe and Pompe diseases, deadly but treatable disorders detected in many other states.
No time to lose: Finding rare diseases in infants Wisconsin doesn't screen newborns for some disorders other states include, which can delay t…
Wisconsin halts plan to keep newborn screening samples for 10 years Lawsuits in other states have raised concerns about parental consent and use of the specimens for medical research and criminal investigations.